So, we hit a setback. Yesterday was much better then today, but holy goodness, it has been kinda scary and such. Kayla has a mass of cysts on her liver, caused from her "uvc" which is an umbilical vein catheter, like a central line IV where it goes directly into her. Anyhow, the catheter was in the wrong spot, it wasn't placed in the wrong spot, but had moved over many times over the week, and caused fluid to build up on and within the liver. Yesterday she was lethargic, has a massively distended stomach, threw up everything she ate, slept, turned yellow like jaundice. She was put on 3 different antibiotics, put on fluid only diet (tpn) and put under the photo therapy light for 24 hours and she was shipped off to the Children's Hospital. It was very scary, I cried and cried and cried for hours.
Today she is much better, she is pink again, she is alert and opens her eyes. She is crying again, acting hungry and just looks so much healthier. Her tummy is still quite descended, and the poor girl had a spinal tap today, but tolerated it very well. The plan is to keep her on the IV antibiotics for two weeks, check out the masses this Monday to see if it shrinks, and if it does she will be sent back to our hospital to continue her antibiotics. It doesn't seem so bad now, as i write it, but as I went through it yesterday, I just fell right apart. For now she is fine though
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